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Medical Marijuana One families story
PENSACOLA - Right now there is a big push to legalize a certain strain of "medical marijuana" in Florida.
Thursday Florida lawmakers heard heart felt testimony from parents around the state on how the strain, "Charlottes Web," could stop their children from having seizures.
Daniel and RayAnne are very caring children who live each day to the fullest at any given time either one of them could have a seizure.
At 2 months old Daniel Dilliard experienced his first seizure. Aged 10 he was diagnosed with Dravet Syndrome. A rare form of epilepsy.
He's nearly 15 now and has over 300 seizures a year.
"You wonder if this one is going to be the one that puts him into a coma, or makes his heart stop, or he stops breathing and you wonder when is the one going to hit," said Kim Dilliard.
"This has happened to us so often we've thought on many occasions that this is the last," said Erick Dilliard.
Daniel is on several medications. Some escalate his seizures.
His parents started looking for alternative medicines and discovered "Charlottes Web."
A strain of marijuana that is high in CBD, an ingredient that controls seizures, and has very little THC which is what creates a high when the plant is ingested.
But the strain will not be smoked. Oil will be extracted and can be used through a feeding tube or even placed on food.
Both parents know the stigma that is attached.
"As a parent I'm thinking this is a plant and they're taking a derivative from this plant that is non psychgenic , it's not addictive, there are no side effects that we know of or that we've heard of and it can't be any worse then some of the meds he's been on already," said Kim.
Thursday parents across the state met with law makers..
The Dillard family was unable to attend. Daniel suffered a seizure that day.
But, the Moseley family traveled to Tallahassee and their story was heard.
Their 10 year old daughter RayAnne also suffers from Dravets and has several hundred seizures a week.
"There were some significant right wing republicans that have been very against the use of medical cannabis for 20 years that openly stated that they were supporting it," said Peyton Moseley.
The committee agreed to file a bill to legalize the use of medical marijuana.
Both families plan to keep fighting and not move to states where the strain is already legal.
"If we stay here like other families are doing and we try to fight for it here we end up helping more people and more children across the state that need this."
"We want to support the people in our state and we want to keep fighting for them we feel like if we leave that is just one less voice to be heard here."
If signed into law RayAnne and Daniel could both have CBD available to them as soon as July.